Immediately after Gracie was born the pediatric cardiologist did an echocardiogram to get a better look at Gracie’s heart. If you don’t know what’s going on you should read this first. The heart echo confirmed the diagnosis that was given for Gracie while she was in Utero. Her pulmonary valve is blocked and the right side of her heart is very small and under-developed. The doctors will be meeting together today and tomorrow to try and determine the best course of action from here. She will likely have a series of procedures called a “Fontan” beginning with a procedure to make sure her ductus arteriosus remains patent (open). The first procedure will probably be done in a couple of days. It is a temporary procedure that will allow her to grow for a few months before another procedure can be done.
Shorthand: Gracie is healthy right now, but her heart will have to be re-arranged a bit to help her remain healthy. The re-arrangment will probably take three steps in the first couple years of her life.
While we wait for the rest of the plan to come together we are enjoying our new little bundle and getting ready to introduce her to her very excited sisters.