Thoughts from my husband: Nine years ago today, Annie and I were married at Faith Baptist Church in LaCrosse, WI. Ten years ago today we began dating after I tried to convince her of it for nearly a year. So, how do you celebrate an anniversary when you have a three week old and your living in a temporary house in a town that you had never been to until a month ago? You go back to the place it all began and tell your kids stories about their mom and dad falling in love. For us, it all began Read More
A Quiet Weekend
After seventeen days in the hospital we have enjoyed a great weekend at the house in Crozet settling in to taking care of Gracie. Apart from a few extra things to do each morning we are really enjoying a very normal baby experience. In fact unless you would know the back story, you wouldn't even be able to tell anything has been going on. Read More
He moves in mysterious ways…
Part of living by faith is learning to respond to the mysterious circumstances that God sometimes uses to direct our paths. There are times in life when despite where we anticipated to be, we find ourselves in another place. If you would have asked me a year ago where I would be at this time I would have told you that I could see myself living in Iceland for many years to come. Even as Gracie was diagnosed in April I remained hopeful that the condition would be treatable with a single procedure Read More
Steppin’ Out
...of the hospital that is. Tonight is a daddy-daughter sleepover at the hospital. For release, we had to be responsible for Gracie with all of her little details for an entire day. So I (Colby) am staying the night here with Gracie and getting us ready for the big release day tomorrow. In preparation for her release we had to be trained on giving her meds, using the pulse oxymeter we will be taking home with us, and our new baby scale. We took a CPR course and covered all the what-to-do-when Read More
Our Little Graduate!
Gracie is doing so well that she graduated from the Intensive Care Unit (they are just waiting for a room to open up on the pediatric floor to transfer her over). The doctors just stopped by and actually said that she could go HOME tomorrow, to which Annie almost wet her pants. We don't feel totally comfortable bringing her home tomorrow, but maybe after getting CPR trained and learning about her Pulse-Ox machine, we'll feel ready to go. We couldn't be happier with her progress. Although Read More
Great Weekend for the Whole Family!
First for the Gracie Update: We began last week with a bed full of wires and now, as you see, Gracie has shed most of her support and is doing great. The big steps in the past few days have been the removal of her breathing tube and RA line on Friday morning, and the removal of her chest tube and arterial line on Saturday. All of these are big steps on the road to recovery. The only hiccup has been the withdrawl symptoms Gracie has had from the pain medicine she was on during recovery. The Read More
The Crash…(you should know about it.)
Annie and I consider ourselves observers. We observe everything we can...smells, sights, people, accents, our children, personalities, and of course our favorite...idiosyncrasies (ours and others). We love to find patterns in things and anticipate things, maybe to a disagreeable fault. Over the past two years, amidst our various crazy times we have observed a pattern that is now unmistakable...it's called The Crash. Most of you who are more intelligent than us probably already know about the Read More
Something the Lord Made
I haven't seen the film, but have heard about it from several people over the last couple of months. So why am I writing about it? The film tells the story of Vivien Thomas (a black cardiac research assistant) and Alfred Blalock (The "Blue Baby Doctor"), the two men largely responsible for pioneering the usage of what is now called the Blalock-Taussig Shunt (BT shunt for short) to treat "Blue Babies". It explores the nature of their research and relationship in the peculiar times before the Read More
The Champ
Super proud of our little girl! Read More
The Day
Did you know that in order to perform open heart surgery the doctors have to first STOP the heart? Well, I just learned that this week. There are some details that I'd rather not know...Right now Gracie is in open heart surgery. Anticipating this moment was worse than the actual moment. Last night we met with the doctors and had a Pre-Operation meeting where they go over every possible thing that could go wrong. It was so brutal that I had to leave....before it even Read More
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