Gracie is ready to be released from the hospital! We will probably be gone by noon today. She has recovered extremely fast and seems almost totally free of pain with only a little tylenol to cut it down. As of last evening we could really see that she was begin to act like she normally does. So, we will spend the night at the house in Crozet and make our way back to Dumfries tomorrow. Read More
Recovery: Day Four
Last night Gracie left the PICU. This morning she had her chest tube out. She has just one more line that needs to come out and she will not have any left. She is eating well and her appetite is starting to pick up. Were not sure yet how many more days she'll need at the hospital, but she is doing great. Read More
Recovery: Day Three
Gracie looks great this morning! She continued to have a good appetite through out the day, remained pretty comfortable, and has resumed playing with her binky. There is a chance she may move out of intensive care today since she is doing so well. Read More
Recovery: Day Two
Gracie looks a lot more comfortable this morning than she did last night. She has been eating 2-3 ounces at a time and seems much happier. She was awake for a while this morning and staring at us without crying and fussing. As you can see, she looks quite a bit better than yesterday right after surgery. Read More
Recovery: Day 1
There she is...What a champ! Gracie continues to remind us that she is one tough character. We are so glad that everything has gone so well and look forward to her getting through the next couple of days as restfully as possible. She is really uncomfortable, as one would expect, but the doctors and nurses are taking great care of her. Here is the flashback from August. Read More
A Trooper
It's 10:00 Am and Gracie is getting ready to go back for an exploratory catheterization. She hasn't eaten since last night, but was amazingly cute and smiley during the prep time. She should be in the cath lab for about two hours, followed by a four hour recovery. Hopefully we will be out of the hospital by this evening. Read More
A Happy Ninth Anniversary
Thoughts from my husband: Nine years ago today, Annie and I were married at Faith Baptist Church in LaCrosse, WI. Ten years ago today we began dating after I tried to convince her of it for nearly a year. So, how do you celebrate an anniversary when you have a three week old and your living in a temporary house in a town that you had never been to until a month ago? You go back to the place it all began and tell your kids stories about their mom and dad falling in love. For us, it all began Read More
A Quiet Weekend
After seventeen days in the hospital we have enjoyed a great weekend at the house in Crozet settling in to taking care of Gracie. Apart from a few extra things to do each morning we are really enjoying a very normal baby experience. In fact unless you would know the back story, you wouldn't even be able to tell anything has been going on. Read More
He moves in mysterious ways…
Part of living by faith is learning to respond to the mysterious circumstances that God sometimes uses to direct our paths. There are times in life when despite where we anticipated to be, we find ourselves in another place. If you would have asked me a year ago where I would be at this time I would have told you that I could see myself living in Iceland for many years to come. Even as Gracie was diagnosed in April I remained hopeful that the condition would be treatable with a single procedure Read More
Steppin’ Out
...of the hospital that is. Tonight is a daddy-daughter sleepover at the hospital. For release, we had to be responsible for Gracie with all of her little details for an entire day. So I (Colby) am staying the night here with Gracie and getting us ready for the big release day tomorrow. In preparation for her release we had to be trained on giving her meds, using the pulse oxymeter we will be taking home with us, and our new baby scale. We took a CPR course and covered all the what-to-do-when Read More
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