We returned to the doctor on Monday for another ultrasound in hopes of gaining a little more information about the baby’s heart condition. After some time the doctor spent some time explaining his findings and answering our questions. We are really appreciative of the medical staff at Barnaspitali here in Reykjavik for spotting the problem and helping us get started on the journey. So here is what we learned on Monday…
1. The doctor is pretty confident that it is Critical Pulmonary Stenosis rather than Pulmonary Atresia with Intact Ventricular Septum
2. There is a good possibility that a Cathetarization may be able to take care of the problem
3. The Pulmonary Artery looks good and he thinks there may be some blood getting through to it. If so it means there may be at least a small needle opening in the valve.
Over the past few weeks we have had the opportunity to settle into the reality of the situation and as we have come to a better understanding some of the fears have subsided. We rest in God’s grace that has been evident in ways that I hope to be able to explain at a later time. Without waxing too theological, we are thankful for the confidence we have in God’s love for us in the midst of difficulty. We have always believed that God’s purposes in the world are more complex, interesting, and mysterious than simply providing us with individual safety and comfort. Many of the events in life help us to understand where our greatest good and most certain joy can be found, as well as where it cannot be found. It cannot be found,though we often look for it, in our own health and vitality – for they are merely gifts, when we possess them, meant to point us to their giver. We believe that God himself is our greatest good and deepest joy and trust that through this experience he will give us a greater measure of himself to know and enjoy by faith. The hope that we have through Christ making a relationship to God open to us is the same hope that the Apostle Paul writes about when he reminds us that “nothing can separate us from the love of God that is found in Christ.” That “nothing” includes the fears that accompany finding out that your baby will be born with a heart defect. For this we are grateful.
As we continue to work through everything you can pray specifically that the baby’s right ventricle would grow and develop well over the next few months and that we would have wisdom as we work with doctors to make a plan for the birth and procedure.